Wellness. Mindfulness. Well-being. Wholeness. Words that are used a lot lately, but they all basically allude to the same thing. Mental Health. It’s the hot topic of the moment and you can hardly turn on the news here in the UK without it being mentioned at least once. Apparently, we are facing a mental health crisis with more people than ever addressing a problem of some kind. We are also being told that now more than ever, there is help in place and we should reach-out to access that help. We are told not to suffer in silence, not to suffer alone, there are people there to help. All sounds good right? So, what’s the problem.
I have vacillated back and forth whether or not to voice my opinion on this subject as I can only really convey my own experience. Plus, this blog was never meant to be about myself. Also, I want to make it clear that this is not meant as a device to evoke sympathy or elicit a reaction of concern. What I am now about to relay is purely a means to try and explain my experiences and relay events as they happened to me. If you think that I’m trying to set myself aside as being unique, or that no one else will be able to appreciate the things that I experience, then you’re wrong. You are wrong because we are all unique. All of us are different in our own way and we are all only able to experience life through our own eyes. It is this uniqueness that is our commonality. The thread that ties us all together.
I have always felt different from everyone else, slightly out of kilter, almost a half-step out of time with everyone else. I’ve never really dwelled on it, as I assumed that everyone feels this way. I also didn’t realise that the coping mechanisms that I put into place that help me deal with everyday life are different to how other people cope with their lives. That is until a few years ago.
To give some context, I am in my late fifties, and it wasn’t until about 10-years ago, that I realised that the way I experience the world, is very different to how most people experience it. Don’t get me wrong, I am certainly not alone in my world’s-eye view, but it has been by connecting with other people similar to myself that has helped me to realise just how different my view is. Let me elucidate.
I have always preferred my own company and have felt awkward in the company of others. Conversation and small talk that come easily to others, always seems just out of my grasp. I have always struggled with what to say, how to start a conversation and what to say next in order to keep the flow of conversation going. Instead, uncomfortable silences seem to be my go-to backup. As a child, my silence was always seen as shyness and whilst this was true to a degree, it was more down to the fact that I just didn’t know what to say. Instead, I chose to say nothing.
I have aways had a way of doing things, an order in which things must be done and if not done so, my world will feel extremely “off”, out of kilter. These are things not driven by superstition or some unexplainable compulsion, but by sense and reasoning. My sense and reasoning. And when explained to others, my reasoning sometimes seems to make sense to them as well. For example, when I wash up after a meal, the cutlery has to be washed first, followed by glasses and cups, then plates and finally pots, pans and baking trays. Done any other way and you may as well wash everything in mud. My rationale. The cutlery is what conveys the food from the plate into your mouth and hence needs to be the cleanest. Therefore, it is washed up first when the water is at its cleanest and hottest. And so, it continues. Glasses and cups touch your lips, so they are next. Plates and bowls however, whilst touching the food, do not come into contact with your person and therefore can come next. And so on. Oh, and I won’t use a dishwasher, but I have a totally different set of reasons for this!! Overthinking? Not to me.
This sense of order and reasoning permeates into all areas of my life and each and every thing I do can be explained and rationalised.
However, the biggest clue to indicate that I may perceive the world differently to others lies in the way that my senses work. Again, this is something that I wasn’t aware was different for me as again I had assumed that everyone’s senses worked the same.
When doing an activity such as reading a book, I am also able to hold a conversation, watch the telly and even listen to some music and I am able to pay equal attention to each activity. If you were to quiz me on any one single activity, I can accurately relay to you what transpired. I can tell you the song that was playing and even relay the lyrics, I can recount the plot of the program being broadcast on the telly, as well as keep up with the conversation being directed my way. I can also recount in detail the passage I had just read in my book. And this isn’t because I switch from one activity to the other, “stop-starting” as I go. I am able to engage in all activities simultaneously. My wife thinks nothing of starting a conversation in the middle of me reading a book and doesn’t question how I am able to ask her relevant questions, all the while maintaining my reading speed and comprehension.
At school, teachers would often chastise me for absent-mindedly gazing out the window and accuse me of not paying attention. When asked to relay back what the teacher had just said to the class, I would be able to do so with clarity and accuracy. On occasion, I would be asked to come to the front of the class and demonstrate on the board what the teacher had just taught to the class, clearly in an attempt to catch me out. Each time I was able to explain what had just been said, and in a maths class once, I was able to complete a problem that the teacher had begun to demonstrate on the board.
This ability to be able to multitask in such a way manifests itself in other areas of my life. I seem to be able to notice things that others miss. Little details here and there, things that may appear insignificant at first, but later on prove to be useful. On entering a building such as a bar or a restaurant, I can quickly work out where all the exits are, who is in the premises, which is the quickest way to leave should something happen and where any potential dangers lie.
I will notice things in TV programmes and films, small incidental things that appear in the background that seem to be of no consequence. I will very often notice things that go against the programme’s continuity – an actor will appear with a watch on from one camera angle, only for it to disappear when the camera angle changes. Pictures that suddenly disappear from a backdrop and extras in the background who are clean shaven one moment and then have a 5’o clock shadow the next. One of my “party tricks” is to be able to identify the make of a car by only its headrest. And the list goes on. My brain seems to be able to assimilate and retain lots of information and all at the same time.
At first glance, this appears to be a great asset, and I will admit, it does have its advantages. But, and this is a very big but, it does have huge disadvantages. I feel as though I can see, hear and smell everything all at once and at the same time. In a public space where there are lots of people, I can hear all of the conversations all at the same volume. Add to that things like background music, kids screaming and crying, incidental noises such as things being dropped, dragged and scrapped, traffic noise and the basic hum of everyday life and it can soon be an overwhelming cacophony of noise. But not a blended overall blaring noise. Each noise is individual and recognised on its own merit. Each noise registering with my brain and fighting for its place at the front.
As you can imagine, sometimes this can be overwhelming. Everything seems louder, brighter, more in focus and generally just more – well, present is the best way I can describe it. Whereas other people seem to be able to prioritise which conversation they will focus on and then mute the rest, my brain wants to hear them all equally at the same time. And this goes for everything else as well. Rather than focus on pertinent details, I focus on everything.
I recently read something by somebody who appears to “suffer” from the same thing, and he described his experiences in much the same way. He finished off by writing, “and I feel my sock all the time.” I couldn’t believe what I was reading. I don’t think I had ever really considered that what I feel and experience was different to everyone else, but here I was reading about someone who experiences almost the exact same things that I too experience. And yes, I feel my sock all the time as well.
So, what has any of this to do with mindfulness and wellbeing? Good question! Whist I have only recently become aware that my brain seems to process things in a different way to everyone else, I have always been aware that I don’t seem to be able to relate to the world around me and the people in it the same way that others do. As a result, I have implemented a number of coping mechanisms to help me navigate the world that is my everyday life. On the whole they seem to work very well, and I appear to be able to assimilate myself into everyday life almost seamlessly. However, these mechanisms can be lengthy and intricate and can also be very time consuming. As a result, they can also be very tiring and at the end of a particularly trying day, I can feel exhausted. String a number of these days together in succession and I feel ready to give up.
And so, it was approximately two-years ago, I had a period of extremely trying days that lead me to the conclusion that I could no longer cope. Perhaps, no longer wanted to cope might be more accurate. Everything felt tiresome and forced. There was no joy in anything and things that I had once looked forward to no longer held any appeal.
But weren’t men supposed to ask for help now. Talk about things. Feelings and the like. So, ask for help it was then as the alternative didn’t bear thinking about, although I could barely think about anything else. With trepidation, I checked the doctor’s website and requested an appointment via email. That seemed a much better option, as I could now relay the reason for my appointment without having to speak to a human being. The form was more detailed than I had expected, but I realised that honesty was the only way if I had any hope of receiving help.
One question in particular had me pausing for rather a long time. “Have you had thoughts of harming yourself of ending your own life?” Two options, two tick-boxes. Yes. No. So binary. So, matter of fact. So, what! I answered honestly, hit send and waited.
I wasn’t sure how quickly I would receive a response, or whether I would receive one at all, but within the hour, my phone rang and it was indeed the doctor. I was asked some more questions, many similar to ones I had already filled out online. Upon completion, I was asked if it would be convenient if a doctor called me that morning, or if I preferred, I could visit the surgery and talk to someone in person. I confirmed that a call would be fine and thanking the disembodied voice at the end of the phone, I ended the call to await the “arrival” of the doctor. I only had to wait twenty minutes.
So began a series of calls and appointments that resulted in a course of counselling. Cognitive Behavioural Treatment – CBT. It was deemed that I was suffering from low mood, more commonly know as depression. The counselling would equip me with the tools and methods to be able to identify the triggers to these low moods and then implement techniques to be able to suppress and eventually beat them. Luckily, I was already familiar with CBT as I had previously done some extensive reading on the subject some years earlier. My mother was a counsellor, and my daughter has a psychology degree and in order to be able to assist both with their studies, I made it my place to familiarise myself with the subject matter (being very well informed is another of my coping techniques – I read a LOT!). Whilst I could see the benefit of CBT counselling, I had my reservations as to whether it would be of help to me. I didn’t feel that I was suffering from depression per se, my “low mood” was more caused by my inability to be able to cope with the world around me in the same way that others seemed to be able to do. My coping mechanisms were exhausting, and I no longer felt that they were sustainable.
The counselling sessions began and I embraced them with an open mind. I pushed any preconceptions that I may have had to one side and tackled each session and subsequent exercise with the goal that I would gain some benefit from it. Unfortunately, CBT wasn’t for me. Don’t get me wrong, for people whose depression is driven by extreme anxiety, or PTSD, or by catastrophising for example, I can see how it would be a great help and if the techniques are applied frequently and diligently, I can see it making a huge difference. Fake it to make it, right! However, my brain just ‘aint wired that way! The sessions, ended, I stopped using the supporting app and well, that was that. I had fallen off the conveyor belt that is NHS mental health services, and nobody seemed to know how to put me back on. My 9-question patient questionnaire “score” was still worryingly high (or should that be low), but the only help that I could now be offered was to extend my sick note.
Meanwhile, my employer was regularly checking in on me and whilst they were saying all the right things – “of, course we will support you”; “anything we can do to help”, etc., but at the same time these statements were interlaced with things like, “but you are letting the team down”; “other people are having to take up the slack”. But procedure was followed, Human Resources were engaged and an appointment with an external Occupational Health specialist was arranged.
Ironically, this appointment turned out to be a breakthrough moment for me, as the doctor I spoke to was extremely thorough and through her intelligent and probing questions, she seemed to have a good understanding of the problems I was experiencing. I was informed that I would receive her report the following day and this wouldn’t be shared with my employer until I had confirmed my approval. The report arrived as advised and I read through with trepidation. As I had suspected from my one-hour session with the doctor, her assessment was extremely insightful and at the risk of sounding extremely cliched, it was as though she had read my mind. But there was one phrase in particular that stopped me in my tracks and I had to re-read it three times before I realised what I was reading.
“There appears to be an underlying element of neurodiversity, and an assessment may help him to access tailored support”
A second session with the Occupational Health doctor was arranged and a second report recommended that my GP should refer me for an assessment, as in their opinion, my depression was as a result of a lifetime of managing these symptoms of neurodiverse behaviour without support.
For a moment I felt validated, I felt heard, but more importantly I felt relief. After a lifetime of struggle, I was going to receive help.
Then reality hit home.
My employer continued with their “support” and after two more meetings, I was offered a settlement package to exit the company. An extremely verbose legal document was sent to me, and I was advised to seek legal counsel. A derisory remuneration package was offered, but I was also told that I had the option to remain in their employ and I would be offered “continued support”.
It’s hard to feel supported when you are also being told that you’re letting the team down and your colleagues are struggling because of you. So, I sought legal advice, signed their severance agreement and accepted their payment without even a mention of a counteroffer. Money has very little relevance when you have no plans for the future.
And there I was. Back at square one. Actually, my square was in negative equity as in addition to everything else, I didn’t have any gainful employment.
Apologies, this has been a bit of a lengthy diatribe. You could also be forgiven if you feel that it has been a bit indulgent and self-pitying. I can assure you that this was never my intention. Quite the opposite in fact. As I mentioned at the start of this post, you can barely turn on the TV (please feel free to replace with, streaming device of your choice) without being told that we are in a mental heath crisis. Many charities and support organisations are doing their best to raise awareness and we are bombarded with the latest marketing speak – “it’s okay to not be okay”.
Is it really okay though? Really? I would argue that it isn’t. It’s easier to pay lip service to something than actually do anything real and meaningful. After having reached out myself, I now find myself no further forward. I reached out and asked for help and I did receive help – it just wasn’t right for me. I felt like a drowning man who had just been handed a tissue. Well, at least my nose isn’t running any more. That’s a comfort as I go under for a third time.
I opened up to the people around me and whilst I could feel their sympathy, nobody really knew what to do. After all, I was the dependable one, the problem solver, the fixer. Who fixes the fixer? I turned to my employers as I felt that I at least owed them honesty if nothing else. In return I was made to feel like a burden, weighing everyone else down. They too offered a solution, although, money is seldom the answer.
For the first time in my life, I tried to explain to others how I felt, how I try to cope and how it impacts on me. The reactions ranged from confusion to disbelief to rejection. Sometimes I could almost hear people’s eyes rolling into the back of their heads as they failed to conceal the frown on their foreheads. They may as well have had a neon sign over their heads. “Not another one claiming to be suffering from depression and anxiety”. In each case, the point I was trying to make was misunderstood and misconstrued.
But that’s okay. I can deal with myself. My real concern is just how many other people are in the same position. How many others have also been failed by their doctors, let down by their employers and most importantly, ignored by the people around them.
So, at the end of the day, is it okay not to be okay. It isn’t – from my experience. At least, not for everyone.
The answer?
I don’t know.
Apologies, if you were expecting words or wisdom that came to me in an epiphany as a result of my experiences. Maybe, if you’re reading this and you have had the same, or a similar experience, you can cling onto a grain of solace in the fact that you are not alone. Sometimes, knowing that the path that we walk in life, we don’t walk alone, no matter how alone it feels at times, is enough to give us the strength to take that next step.
And what now for me.
My coping mechanisms are back in place, and I will carry on until they stop working again. I have learnt that it is foolish to plan beyond this.
Does this help?
Not really, but what else can you do.
Oh! I can still feel my sock all the time…..









